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Caregiving: Being a Savvy Consumer and More

Annotation:NIH Senior Health - Very useful, easy-to-read site covering all the typical questions about Medicare.

Annotation:AARP - Basic definitions of what advance directives, living wills, and health care power of attorney documents are, how to obtain them and how to store them.

Annotation:Aging in the Know - Useful information about informed consent, advance directives, surrogate decision makers, living wills, and the importance of communication.

Annotation:National Institute on Aging, National Institutes of Health - Suggestions on how to organize legal documents, and personal and financial records, in advance of events that require a caregiver to take over.

Annotation:Alzheimer’s Disease Education and Referral Center. National Institute on Aging, National Institutes of Health - Suggestions for advance planning for newly diagnosed AD patients and their caregivers. Includes link to Legal and Financial Issues for People with Alzheimer's Disease: A Resource List <http://www.nia.nih.gov/alzheimers/legal-and-financial-issues-people-alzheimers-disease-resource-list

Annotation:American Heart Association - Brief but excellent list on caregiver rights and needs. Part of a larger site devoted to Caregivers with many helpful suggestions on how to take care of oneself and specific guidance on communicating with family, friends, healthcare professionals and more.

Annotation:AARP - Thoughtful discussion caregiving and stages of life.

Annotation:National Institute on Aging, National Institutes of Health - Tips for caregivers, including physical, emotional and spiritual issues.

Annotation:ALS Association - Good discussion of causes and symptoms of burnout; with some suggested solutions.

Annotation:National Institute on Aging, National Institutes of Health - List of general and specific resources (such as home health care, meal services, adult day care, respite services), what they do, what to know about their cost, and how to find them.

Annotation:U.S. Food and Drug Administration - Useful articles and resources, including medicine safety, how to report a bad reaction to a medicine, and how to protect yourself from health fraud.

Annotation:P.O. Box 8250 Silver Spring, MD 20907-8250 - 1-800-438-4380 (toll free) - Mon-Fri, 8:30 am-5:00 pm Eastern Time - e-mail: adear@nia.nih.gov - Provides information, publications, news, resources, and research on Alzheimer's topics

Annotation:225 North Michigan Avenue, Floor 17 - Chicago, IL 60601-7633 - 1-800-272-3900 (toll free) - 1-866-403-3073 (TDD/toll-free) - National voluntary health organization, with local chapters, dedicated to Alzheimer's care, support and research. Provides services to those affected by Alzheimer's and other dementias as well as engage in public advocacy and research support.

Annotation:322 Eighth Avenue, 7th Floor - New York, NY 10001 - 1-866-232-8484 (toll-free)

Annotation:3197 Trout Place Road Cumming, GA 30041 1-800-752-3238. Online store with products for people with Alzheimer’s disease and their caregivers.

Annotation:2025 E Street - NW Washington, DC 20006 - 1-703-206-6000. Health information and services, programs for older people, instructions for family caregiving and nurse assistants.

Annotation:P.O. Box 167, Richboro, PA 18954, 1-800-227-7294 (toll-free). Provides information, referrals, support and advocacy for family caregivers of the elderly or chronically ill

Annotation:U.S. Administration on Aging - 1-800-677-1166 (toll-free). Help finding local support and resources for older adults and their families.

Annotation:180 Montgomery Street, Suite 1100 - San Francisco, CA 94104 - 1-800-445-8106 (toll-free). Support services and information for people who care for family members. Some fact sheets are available in Chinese and in Spanish.

Annotation:10400 Connecticut Ave., Suite 500 - Kensington, MD 200895-3944 - 1-800-8966-3650 (toll-free). Education, and advocacy for people who care for family members.

Annotation:63 West Main Street, Suite H - Freehold, NJ 07728 - 1-800-838-0879 (toll-free). Support for spouses and partners of the chronically ill or disabled.

Annotation:SeniorNet and Dr. Terrie Wurzbacher - Doctors and patients can sometimes be on different wavelengths. This article provides practical tips on how to prepare for an effective medical appointment.

Annotation:National Institute on Aging, National Institutes of Health - Tips for finding reliable health information.

Annotation:Medline Plus - Excellent guidelines for evaluating web resources for the consumer.


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